I'm in the hospital today through Friday to receive the new R-ICE chemo. It has more severe side effects than the last chemo. Confusion and kidney damage are a couple of the things they'll be watching for. They are having me drink 3 quarts of water all day and giving me medicines designed to protect my kidneys, but there is nothing they can do about the confusion but luckily there's a less than 5% chance of it. So if you come to visit me, it might be more entertaining than you bargained for. They're also concerned about my weight loss over the last week (10 pounds) and are giving me something to increase my hunger.
I need a couple favors once I'm released. If I get as sick and fatigued as they tell me I will, then I'll need someone to take me to my oncologist appointments on July 11 and July 18th at 2 pm.. Both appointments are just to check my blood so they should take less than an hour. Thank you.
I meet with the transplant team sometime on July 14th. For some reason I'm really scared for this appointment. Terrified. I'm probably going to be on Valium that day. My sister Jill is going with me so I won't be alone. I understand that they'll test my five siblings in hopes of finding a bone marrow match. I'm lucky I have a large family. I'm hoping they aren't looking at doing the transplant in the near future so I have some time to process everything they'll tell me. I understand I'd be in the hospital 5 weeks for it.
Thank you for your kind texts, emails and posts. Also thanks to all the people who've driven me to my chemo appointments and those who brought me dinner. It's wonderful to have such a great support system!
Monday, July 4, 2016
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